The most frequently occurring permanently disabling birth defect, affecting approximately one out of every 1,000 newborns in the United States.

When the spine of the fetus fails to close during the first month of pregnancy, the baby is born with spina bifida. One or more vertebrae remain open in the newborn, leaving that section of the spine exposed and unprotected. These crucial nerves become damaged. Surgery to close the back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.

Spina Bifida results in varying degrees of paralysis and/or loss of sensation in the lower limbs. Almost all people with spina bifida have some form of bladder and bowel dysfunction.

Medical developments have improved the quality of life tremendously. Continuing research brings innovative solutions to those of us challenged by spina bifida.