Videos
Audio Tapes
Books
Folders
Resources
Pamphlets

Videos

• “JOINT HOUSE HEARING on Discrimination of the Basis of Disability” (9/27/88)
• 1996 Annual Conference – Bowel Program for Infants and Pre-Schoolers
• 1996 Annual Conference – Chairi II Malformation: Issues of Care
• 1996 Annual Conference – Medical Research: Emerging Issues in the Field of Spina Bifida
• 1996 Annual Conference – Orthopedic Update for Infants and Toddlers
• 1996 Annual Conference – Words of wisdom should be heard more than once(2)
• Conference Tape #2 (1988)
• Employment conference – Transition year 14 – Employment (2 tapes)
• Enable: People with Disabilities and Computers
• How to Make a Manifest Determination
• How to prepare for a hearing
• Most Common Procedural Mistakes
• NW Trek – 10 field trip tips
• Puppet Show, Speaker on Catheterization, Ronald McDonald, Robot, Magician
• Putting care into action
• Rampvan (7 minutes)
• SBAA “Points for Tomorrow”
• Students and Assistive Technology – Meeting the Needs
• World View: The Challenge

Audio Tapes

• # 13 SBAA 1996 Conference: Teaching Test Taking Skills to Disabled Learners
• # 22 SBAA 1996 Conference: Neurology Updates for Infants/Toddlers
• # 28 SBAA 1996 Conference: Urological Updates on Teens
• # 31 SBAA 1996 Conference: The Challenges of Changing Families: Single Parenting and Steps Parenting in Today’s World
• # 36 SBAA 1996 Conference: Neurology of Spina Bifida
• # 37 SBAA 1996 Conference: These are all Your Students: Developing and Inclusive Educational Environment (2 tapes, A and B)
• # 41 SBAA 1996 Conference: Chapter Development: How We Got Here
• # 42 SBAA 1996 Conference: Bowel Program for School Age Children
• # 44 SBAA 1996 Conference: Chapter Development – Motivation
• # 48 SBAA 1996 Conference: Redirection Interaction: Practical Management
• Strategy for Students Attention Deficit Disorders (Part 1)
• # 50 SBAA 1996 Conference: Parent Empowerment
• # 55 SBAA 1996 Conference: ADA – Emphasis on Schools
• # 61 A Team Approach to Feeding Children with Spina Bifida
• # 7 SBAA 1996 Conference: Peer Training for Self-Advocacy: An Analysis of its Effectiveness and Benefits
• Discipline-- kids are worth it
• IDEA 12 - ‘97
• Never Let Go of Your Dreams (Roger W. Crawford the 2nd)
• Speakers: “Steve Hinderer” / Adults with Spina Bifida
• Weight Management A/B

Books

• A House for All Children: Planning a Supportive Home Environment for Children with Disabilities
• A Parent’s Guide to Spina Bifida
• A Survey of the Medical and Function Status of Members of the Adult Network of SBAA
• Accessible Gardening for People with Physical Disabilities
• An Accident at Birth – A Chronicle of My Time by Robert F. McKellar
• Back to School on Civil Rights
• Be PREPARED – Guiding Students with Disabilities Though Transition from High School to College
• Becoming the Me I Want to Be – A Guide for Youth with Spina Bifida and their Parents and Mentor
• Bowel Continence and Spina Bifida SBAA (2 copies)
• Building Skills – A Guide for Parents and Professionals Working with Young People Who Have Spina Bifida (SBA of Kentucky)
• Children with Spina Bifida – A Parents Guide by Marlene Lulkenhoff
• Children with Spina Bifida: Early Intervention and Preschool Programming
• Classroom Success for the Learning Disabled by Suzanne Stevens
• Confronting the Challenges of Spina Bifida: A Group Curriculum Addressing Self-Care, Self-Esteem, and Social Skills in 8 to 13 Year Old Children
• Determined to Win – Eight Time Boston Marathon Winner Jean Driscall with Janet and Geoff Benge
• Development Today: A Fundraising Guide for Non-Profits
• Ducan Seminare XXIV SB: Issues Across the Life Span
• Enabling Romance: A Guide to Love, Sex, and Relationships for the Disabled
• Finding and Keeping an Attendant
• Guidelines for Spina Bifida Health Care Services throughout Life
• How to Form and Maintain Non-profit Corporation in WA State
• How to Get Services by Being ASSERTIVE
• How to Organize an Effective Parent/Advocacy Group and MOVE BEAURACRACIES
• How to Provide for Their Future
• Information Summary and Recommendations Neurodevelopment Therapies Mandated Benefits Sunrise Review (2 copies)
• Ladders to Success – A Students Guide to School after High School
• Lift Every Voice – Modernizing Disability Policies and Programs to Serve a Diverse Nation
• Making Choices – A Journal/Workbook for Teens and Young Adults with Spina Bifida to Provide Opportunities for Making Choices about Their Lives
• Management of the Neurogenic Bowel and Bladder
• Motherhood Magnified – Inspiring Stories of Insight and Lessons Learned from Raising a Child with Special Needs by Jill Rose Ford (2 copies)
• No More Stares – The Disability Rights Education and Defense Fund, Inc
• One Step
• Preventing Neural Tube Birth Defects
• Preventing Secondary Conditions Associated with Spina Bifida or Cerebral Palsey; Proceeding to Recommendations of a Symposium (2 copies)
• Reproductive Issues for Persons with Physical Disabilities
• Social Development and the Person with Spina Bifida (SBAA) (3 copies)
• Special Education and the Law – OSPI (Feb, 1998)
• SPINAbilites: A Young Person’s Guide to Spina Bifida
• Strategies for the Future: Long Range Plan Report Phase 2:2002-2003
• Taking Charge of Your Life (4 copies)
• Taking Charge: Teenagers Talk about Life and Physical Disabilities (159 pages)
• The Non-Profit Handbook – Everything You Need to Know to Start and Run Your Non-Profit Organization
• The Rehab Act of 1973, As Amended Incusionary Education for Students with Disabilities: Keeping the Promise (1994)
• The Source Book for the Disabled
• Washington’s Infant Toddler: Early Intervention Program Study (Dec. 1, 2000) Enrollment of Washington Children with Disabilities and Special Health Care Needs in Washington State Public Programs
• You will Dream New Dream: Inspiring Personal Stories by Parents of Children with Disabilities (Stanley Dklein, Ph.D and Kim Souve)

Folders

• AGENCY Brochures
• Agent Orange
• Arnold-Chiari
• Awareness Kit 2000 – by SBAA
• Bowel and Bladder
• Driving
• DSHS
• Folic Acid – March of Dimes
• Estate Planning/Will
• IDEA ’97
• Information and Strategies: Parent/Teacher Packet – (Colorado SBA)
• Kids’ books
• Latex Allergy
• Learning Disabilities
• Order Forms
• Orthopedic Issues (Hips, Scoliosis, and Tethered cord)
• Parent/Teacher packet - ESBA
• Parent/Teacher packet – SBAA
• Personal Assistant
• SBAA General Information Brochure
• Service Dogs
• Shunts and Hydrocephalus
• Spotlights from SBAA:
• Educational Issues Among Children with Spina Bifida (reprinted 1995) by Donald Lottar, Ed. D.
• Genetic Implications of Neural Tube Defect
• Hip function and Ambulation
• Kidney Care
• Latex (Natural Rubber) Allergy in Spina Bifida Patients (2 copies)
• Learning Among Children with Spina Bifida
• Symptomatic Chiari Malformation (5 copies)
• The Baby Doe Law and Regulations as They Affect Infants Born with Spina Bifida (2 copies)
• Urologic Care of the Child with Spina Bifida
• Strabismus

Resources

• Binder – Resources
• FAPE Newsline Digest (April – June 2000)
• Health and Wellness Resource Directory 2001-2002 (2 copies) Good Sam
• Notebook - Directory of clinics Resources Guide for Developmental Disabilities 1999 - 2000 (PC2)
• Assistive Technology resource - Helpful for IEP meetings provided by SBAA. Hands on resource. It is a wheel which offers quick and easy access to a generic list of Assistive Technology. One side of the wheel has federal definitions of AT devices and services. The other side provides info about, books, internet sites, newsletters and journals. The AT tools include areas such as mechanics of writing, computer access, math and reading.
• Starting Point, Resources for Children with Special Health Care Needs in Washington State. You can also access the guide on Children’s Web site: http://www.seattlechildrens.org. Go to “Parents, Children & Families”, and then “Children with Special Needs”. Choose Community Resource Guide.

Pamphlets

• 14-23 Transition
• A Guide to Disability Rights laws (2 copies)
• A Primer in Publicity
• ADHD: A Guide for Families
• An Introduction to Spina Bifida (2 copies)
• An Introduction to Your Child Has Spina Bifida or Other Neural Tube Defects
• Answering your Questions about Spina Bifida
• Be a Savvy Health Care Consumer, You life May depend on It!
• Following Your Dreams (2 copies)
• Guide to Fundraising and Public Awareness
• Learning Disabilities and the Person with Spina Bifida (2 copies)
• Making the Work Place Assessable: Guidelines, Costs, and Resources
• Medicare, Managed Care and AAC Devices
• One Step at a Time
• Pediatrics Improving Transition for Adolescents with Special Health Care Needs from Pediatric to Adult Central Health Care
• Planning Reasonable Accommodations: A Cost - Effective Approach in a Legal Frame Work
• Sexuality and the Person with Spina Bifida (2 copies)
• Straight Talk... Parent to Parent
• Supplemental Security Income and the Family Law Attorney
• Teens Who Self Cath
• The Americans with Disabilities Act: Questions and Answers (2 copies)
• The Needs of Children with Spina Bifida
• When something is wrong with Your Baby... Looking in and reaching out
• Your Special Child (2 copies)
• Your Special Child: How to Choose a College